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Bleeding Disorders Organizations

National Hemophilia Foundation (United States)

Search for Local Chapters of the National Hemophilia Foundation in the US

Hemophilia Federation of America

Links to International Bleeding Disorders Organizations

 

Free Health & Legal Information

Bleeding Disorders Resources from Coping.org

Bleeding Disorders Legal Hotline -- Call Toll Free 1-800-520-6154

Free Information and Aids to Quit Tobacco--for all New York State Residents

New York State Department of Health (general health information)

 

Financial Assistance

www.positudes.org

 

Camps for Youth with Bleeding Disorders

http://www.nhfyouthworld.org/camps.htm

 

Information

Information about bleeding disorders

Women with bleeding disorders--Project Red Flag

Basic Concepts of Hemophilia:  A Self Study and Planning Guide for Families

Basic information about bleeding disorders from womenshealth.gov

Bleeding Disorders & Being Prepared for Emergencies in Central New York

Brochure:  Coping with Chronic Illness

 

Newsletters & Magazines

NHF Newsletter

The Parent Empowerment Newsletter

Hemophilia Leader

 

National Prevention Program

The NHF National Prevention Program's goal is to prevent or reduce the complications of bleeding disorders.

 

Treatment Centers

TIP:  Use this search if you are traveling.  Keep the list with you at all times so you can access local treatment centers in case of emergency. 

Search for Treatment Centers in the United States

Search for Treatment Centers Outside the US

 

Scholarships

Link to scholarships for persons with bleeding disorders and their families

 

Support

Project Red Flag online discussion group (for women with bleeding disorders)

Discussion groups for newly diagnosed children and inhibitors

Yahoo Bleeding Disorders group (for parents of children with bleeding disorders)

Yahoo Hemophilia group (for persons with Hemophilia)

Yahoo von Willebrand group (for persons with von Willebrand disease)

Contact CNY Bleeding Disorders Association